Contact Us

Contact submission form COMING SOON. For information on enrolling or other inquiries, please reach out to us at 844-722-8774 (Option 1) or Please be prepared to provide the following information:

Are you a:

  • Patient or Parent/Legal Guardian
  • Medical or Research Professional
  • Other

Reason for contacting the rrHBL Registry

  • To find out more about participating in the Registry
  • To request access to registry data for research
  • Second opinion/clinical advice
  • Other

Your full name, phone number and email.

If you would like to be contacted by telephone, please let us know when the best time to reach you will be within the registry’s business hours (8:00am – 4:30pm EST Tuesday – Friday)