Enroll a Patient
Patients of all ages with a suspected diagnosis (per treating oncologist/surgeon) or confirmed diagnosis of relapsed and/or refractory hepatoblastoma are eligible to enroll in the registry study. The registry collects clinical data from medical records from all patients who agree to participate, and tissue samples will be collected if available from patients.
If you have a patient you believe would wish to enroll please print out a copy of this consent form and informational handout and provide it to your patient. If contacting the Registry on your patient’s behalf, you must receive the permission of the patient and/or family to share contact information, such as email or phone number. Alternatively, you may direct the family to contact the Registry directly to set up a time for a phone consent with our research coordinator. Should your patient wish to participate in the Registry, the following procedure will be followed with them directly by our research coordinating team to obtain their consent:
Patients of all ages with a suspected diagnosis (per treating oncologist/surgeon) or confirmed diagnosis of relapsed and/or refractory hepatoblastoma (rrHBL) are eligible to enroll in the Registry. The Registry collects clinical data from medical records, copies of imaging and reports, and pathology slides from all patients who agree to participate. Tumor tissue samples will be requested for collection and storage (for future biological research), as well as development of new tumor models when feasible.
If you are interested in enrolling yourself or your child in the Registry, please follow the procedure outlined below: